tag:blogger.com,1999:blog-47191224438793077512023-06-20T21:33:11.069-07:00ME HealthquestThis blog discusses treatments for Myalgic Encephalomyelitis (M.E.)Unknownnoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4719122443879307751.post-6956164086943046762015-08-08T23:40:00.000-07:002015-08-08T23:40:16.578-07:00Don't Join th CDC Rescue <!--[if !mso]>
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<span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; mso-fareast-font-family: "Times New Roman";">DON'T JOIN THE CDC RESCUE being
promoted by the CAA/SMCI supporters! All the CDC does with its "CFS"
budget is hurt M.E. patients; why should any patient use her precious energy to
help the CDC?</span></div>
<div class="MsoNormal" style="line-height: normal; mso-margin-bottom-alt: auto; mso-margin-top-alt: auto;">
<span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; mso-fareast-font-family: "Times New Roman";">Did you notice all this hullabaloo
is happening just before SEVERE ME DAY? Maybe the govt doesn't want people to
know what severe ME looks like. Maybe they are afraid the public might become
more interested in helping ME patients if they see the very sickest. Maybe they
are just afraid the people who are really sick with ME and can't leave their
beds may become known, as compared to the CAA/SMCI people who have
"CFS" and can still work full time and engage in an active social
life--and sometimes starve themselves as a protest or jump out of an airplane
for publicity.</span></div>
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<span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; mso-fareast-font-family: "Times New Roman";">Great! I got a message from Co-Cure
with the same "save the CDC's budget" message that was on Spotila's
and Verillo's blogs. It says it's by Cort and Courtney and Robert Miller. So
this is a coordinated campaign to get any patient they can to jump on their
wagon and contact their Congressmen and Senators in favor of the CDC. This
seems just ridiculous to me. They are getting patients to spend their precious
energy to help the CDC when the CDC only spends money to hurt patients! Why
would any patient do this?</span></div>
<div class="MsoNormal" style="line-height: normal; mso-margin-bottom-alt: auto; mso-margin-top-alt: auto;">
<span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; mso-fareast-font-family: "Times New Roman";">Oh--and Hillary Johnson thinks we
should send a thank you note to the Senate for wanting to cut CDCs M.E. money.</span></div>
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<span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; mso-fareast-font-family: "Times New Roman";">Quote: </span></div>
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<span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; mso-fareast-font-family: "Times New Roman";">Hillary Johnson @oslersweb Aug 5</span></div>
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<span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; mso-fareast-font-family: "Times New Roman";">Hey guys, write a thank you note and
send congrats to Senate for wanting to cut CDC's M.E. money. My dream of 29
yrs.</span></div>
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<span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; mso-fareast-font-family: "Times New Roman";">*********************************************************************************************</span></div>
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<span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; mso-fareast-font-family: "Times New Roman";">You are welcome to share this
message if you like.</span></div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4719122443879307751.post-65598652829490613612011-09-29T11:02:00.000-07:002011-09-29T11:02:29.037-07:00VIP Dx/UNEVX cannot continue to sell their XMRV/HGRV testThe reason VIP Dx/UNEVX can't continue to use the same test for XMRV/HGRVt, no matter what they call it, is because WPI was unable to validate the VIP Dx test.<br />
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One point I want to emphasize is that it is VIP Dx's test results that are in question here, not the research results upon which WPI relied in its research publications. The problem with the VIP tests would not affect the results of tests used in research at WPI because WPI researchers used several tests on each sample, and VIPDx used totally different tests and sample matrices that were never validated against WPI methods or done with the appropriate controls.<br />
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Dr. Judy Mikovits was not part of VIP Dx, and she is not part of UNEVX either, as far as I know. Whatever problems VIP Dx has, they are theirs and not WPI'S.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-4719122443879307751.post-4208035141380758002011-08-31T13:26:00.000-07:002012-08-12T08:20:00.526-07:00Survey on M.E. TreatmentsUnknownnoreply@blogger.com13